I really don't believe how badly organised the NHS can be sometimes. Firstly, yesterday afternoon they were saying I would come in for this bone pinning today, then they called last night to say it would happen Monday.
Late this morning Jen takes a call saying come in Sunday; now this call was from "bed allocation" which she immediately queried because the call last night stated they don't have any theatre time this weekend. So, back goes the bed allocation lady to check and Lo and behold! no they don't have any available theatre time this weekend!
Although all this journey thus far has been undertaken via NHS I do have Bupa cover from work and I will call the private wing at QEQM on Monday to arrange the pinning operation under my Bupa cover. Have already spoken to Bupa and it shouldn't be a problem. That way we get done privately, probably quicker, and with the best care there is, allowing for the fact that the op has to be done after the commencement of my chemo, which creates some issues due to the impending loss off immune system.
This can be counteracted by the use of a drug known as G-CSF. This drug helps promote white blood cell production in cases of low immune response such as cancer patients. The oncology consultant says they should use that and it shouldn't be too much of an issue
Information on G-CSF here
So that's the plan as of today, but of course we are subject to change at any time.
I should report that thus far I haven't had any noticeable side effects (as yet) so I am keeping fingers crossed, and certainly until I have the pinning operation: don't want to be having an operation while dealing with the chemo backlash. Worst way that can wait till afterwards as next chemo is scheduled for 28th March.
Oh Paul. How bad can things get? I am socked all over again at the 'care' and general standard of information you are receiving from the NHS again. Well done on keeping us informed here. It's sops us pestering you for info all the time. :-). Thinking of you xx rose xx
ReplyDelete