Seems like everything is conspiring to put obstacles in the way. Furthermore it also seems that the person who should know that there is a spanner, that person being me, doesn't get told. So having got myself prepared for the second chemo cycle tomorrow the fact that I had had an operation last week leaving me with staples and stuff in my arm that won't get removed until next week sometime means no chemo because of the risk of infection while the operation wounds heal.
This of course is an eminently sensible course of action except that nobody actually thought to point it out to me, and as they say on the Simpsons: DOH
Just means that I now have to wait probably till 16th April for my next chemo dose. What really annoys me is the fact that everyone knows this is a sensible option, and everyone agrees that what should happen, but nobody thought to tell the most important person (in my opinion at least!) in all this which is me. Now when I heard this to say I was a little pissed is an understatement and this has now made me decide that as of now, anything to do with this treatment absolutely MUST come through both me and the oncology consultant. The management of the treatment should, in my view involve the patient, should it not? As of now if they don't consult with ME they will be in big trouble.
I have always been someone who likes to be in control and I think the last week , with the op on the arm and stuff I had kind of lost the control of the cancer stuff but this will put me back in control, which is a far better situation. We have a meeting with the oncology consultant on Thursday so we will set this all out then and ensure that everyone involved knows what is required.
The sudden realisation that you have cancer hits you like a sledgehammer. On 9th February after 2 months of tests and all sorts thats what they told me. In more ways than one it's a life-changing moment and your mind goes into overdrive thinking all kinds of worst case scenarios.
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